Month: April 2013
This is the second time Alex has brought home a teacher’s book from school (the one they read that corresponds to the subject being taught that day). I’m not exactly sure what transpires, but my guess is they read it out loud and he either begs to have it read again or just asks to take it home. How can you say no? We read it over and over and then return it the next school day.
The big word he came home with today was – Metamorphosis.
Just two boys in a box.
I count 10.
Cars. Cars. Cars.
I walked in to find Alex helping Teague take a drink from a “big cup.”
His sign kind of says it all.
Wade and I had Alex’s school conference tonight. We made a date night out of it and went out for dinner and bowling afterwards. Wade was in charge of putting our names into the computer. When I saw the big “W” up first I patiently waited for Wade to bowl. He kept sitting. Eventually he asked me if I were going to bowl. It turns out he put “W” in for “Wife” and “H” in for “Husband” which just happened to correspond (alternating) with our fist names. What are the chances?
Personal story time!
(There were other kids at story time, but most of them were younger than Teague. Miss Vickie had picked a book for Alex and Riley and Riley couldn’t make it. The other kids quickly lost interest so Alex got a personal story today.)
There were only a few kids at storytime today so I decided to let Teague participate. I think he would have been just as happy to sit at the table and have his snacks (his normal routine during the craft and book), but he did pretty well and definitely knew when it was time for ice cream.
We recently saw a little boy at the park playing baseball with his Daddy. Alex has wanted to play ever since. Today we finally got out his baseball and bat.
Teague wanted to play soccer just like Daddy.
“It’s 15 pounds”
A little family reading.
Dinner prayers.
I was fixing lunch and Teague needed entertaining. Here Alex is pointing out and naming the cars/trucks/vehicles in the Truck Book.
Alex is never sick. Occasionally I have thought he had a slight fever but never enough I even got a thermometer out to check. Today he was definitely a little under the weather. My first clue was when he asked if he could eat his cereal laying down….
Then he wanted to lay on the couch. This isn’t that unusual because he loves to “take naps”. The unusual part was when I realized he had actually fallen asleep and slept for a couple of hours at 9 am!
Today we remembered helmets.
Example of a well fitting helmet.
“I’m just checking to make sure Gram’s in there.”
Teague was so excited about his new car sheets he didn’t want to get out of bed.
Alex spends at least part of every day playing Rescue Bots – thank you Easter Bunny for bringing Heatwave. It’s his favorite!
For a boy who begged and begged for slippers (see here), Alex wears them less than 3 minutes at a time. He does want them most mornings when he sees me put mine on, but they are off by the time we start breakfast.
Teague’s first popsicle. He had more fun playing with it than eating it.
Alex has wanted to sleep in our bed for months and months and kept waiting for me to take a trip so he could sleep with Daddy. (I think at some point he realized this wasn’t going to happen anytime soon.) Then he realized he could sleep in our bed with Gram!
Today was Teague’s big day of doctors. We had a 1 pm appointment with the research doctor and a 2 pm appointment with the ophthalmologist-in-chief. Thankfully Teague cooperated and took an early nap for us and we arrived at Boston Children’s Hospital with a happy boy. I can not stress how awesome our experience was! We ended up having a joint appointment in opthalmology with the researcher and ophthalmologist – a 2.5 hour appointment. The research doctor has a study focusing Congenital Fibrosis of the Extra Ocular Muscles (CFEOM) and has been our main contact throughout the process. Both doctors were personable, easy to understand, and just fantastic in general.
A routine eye exam was done and then quite a few specialized tests, including some pictures and videos of things they found interesting. Everything they said went right along with what we had been told initially. Teague will never move his eyes up and down. Surgery will help to align his eyes. There are several issues that can occur with surgery – the eyes can end up too high and require immediate eyelid surgery so that Teague can see, or the eyes can skew to the sides and require a second surgery to align them back to the middle. The doctor didn’t expect that either of these would happen in Teague’s case, but nothing is guaranteed. The ophthalmologist mentioned he had done “lots” of these surgeries. Wade finally asked for a number, especially since this is such a rare disorder. The doctor said he has done 20 of these surgeries on children (and at this point Wade and I were pretty sure we would be returning to Boston for Teague’s surgery). The doctor’s surgery schedule is 2-3 months out and he does like an MRI done before surgery. Our best guess is this will be done sometime this summer.
We talked for a while more and then drove straight to the airport for our flight home. It was a quick trip, but well worth it!
Sharing a snack with Mumby.